SLEEP AND PAIN IN
SICKLE CELL DISEASE
What is this project about?
We are seeking to better understand sleep and pain in people with Sickle Cell Disease.
These studies are approved by the Johns Hopkins Institutional Review Board (IRB00100060). The principal investigators are Claudia M. Campbell, PhD, and Jennifer A. Haythornthwaite, PhD.
Am I eligible to participate?
We are looking for volunteers who are diagnosed with Sickle Cell Disease and are at least 18 years old. Take the screener here to find out if you might be eligible to participate in this study!
What will I be asked to do for these studies?
Your participation will involve: (1) undergoing a phone screen, (2) attending at least two in-person study visits (lasting between 2-5 hours), and (3) completing two online follow-up sessions (lasting ~1 hour each). As part of your in-person study visits, you will undergo 1-2 brain imaging sessions with sensory testing, and 5 intervention sessions to target sleep problems. We will also ask you to complete daily surveys during the study.
Will I be compensated for my time in this study?
Yes! You can earn up to $1,025 for completing all study-related activities. We will also reimburse you for your transportation to study visits.
How can I find out more information?
By artist and Sickle Cell Disease advocate, Hertz Nazaire