SICKLE CELL AND PAIN
What is this project about?
We currently have two projects seeking to better understand sleep and pain in people with Sickle Cell Disease.
These studies are approved by the Johns Hopkins Institutional Review Board (IRB00100060). The principal investigators for Study 1 are Claudia M. Campbell, PhD, and Jennifer A. Haythornthwaite, PhD. The principal investigator for Study 2 is Patrick H. FInan, PhD.
Am I eligible to participate?
We are looking for volunteers who are diagnosed with Sickle Cell Disease and are at least 18 years old. Take the screener here to find out if you might be eligible to participate in one or both studies!
What will I be asked to do for these studies?
For Study 1, your participation will involve: (1) undergoing a phone screen, (2) attending seven in-person study visits (lasting between 2-5 hours), and (3) completing two online follow-up sessions (lasting ~1 hour each). As part of your 7 in-person study visits, you will undergo two brain imaging sessions with sensory testing, and 5 intervention sessions to target sleep problems. We will also ask you to complete daily surveys during the study.
For Study 2, your participation will involve: (1) undergoing a phone screen, (2) attending two in-person study visits (lasting ~2-5 hours each) at the Johns Hopkins Bayview Medical Campus, (3) completing one brain imaging session at the University of Maryland, Baltimore, and (4) completing daily surveys for 2 weeks using a smartphone that we will provide for you.
Will I be compensated for my time in this study?
Yes! For Study 1, you can earn up to $1,025 for completing all study-related activities. For Study 2, you can earn up to $590 for completing all study-related activities. We will also reimburse you for your transportation to study visits.
How can I find out more information?
By artist and Sickle Cell Disease advocate, Hertz Nazaire